Thursday, November 8, 2012

A Rant

I've been reading post in my GP support group on Facebook. This post is geared for them.

         Many of you have been dealing with this gp stuff longer than me. Here's what I've noticed and what frustrates me. With GP there is NO standard of care. There is no text book way to diagnose, ease symptoms,and cure GP. It would be so much easier to say {god forbid} have cancer. There are standard ways to treat cancer, there are hit and misses, yes, but there is a way to treat it that tends to work for most people. Thank God for that and thank God there are so many that can be cured. My thoughts are that we all have to become our own advocate and I've seen that so many of you are. We're just in this big leaky life raft and spinning in circles! I'm bipolar, there are many meds to regulate this. It's hit and miss, but eventually most folks find a combo that works for them. GP is not like this I'm learning! Last week I was sick as hell. This week I'm eating myself out of house and home. The symptoms flip flop that fast for me. I'll feel all normal, then its two steps back! Some folks will scare the shit out of you with their horror stories. You think, Oh, mines not that bad. then you have a bad few days and think, Mine is just as bad. I don't have the hospital stays or feeding tubes, or gastric pacemakers. I've been through my own gastro hell since I was a kid.
 
      I read that some people can only eat pureed foods and such. I can relate to that b/c I had two fundoplications. That surgery was the hardest on me yet. I had to have it done twice b/c it didn't work the first time. I know all about a soft food diet and the frustration and cravings for a turkey sandwich that go with that. I've had my gall bladder out, since that filter is gone, I've about pooed while walking down an aisle at Save A Lot. I know all about that. I have experienced a wide cast of gastro malfunctions. My weight has ebbed and flowed. Part of that is yes, being a girl. The other part is stress eating and medications.  With my weight as still big as it is, you can tell I could put up some groceries. I can't do that much anymore. All that has really tasted good is junk! Like Doritos and banana pudding.  I ate salad this week, so far it's not hurt me,but it's sticking around, so I choked down Miralax last night. Kinda did the job.
 Last week I was so depressed again about it and today I'm all lets kick GP in the face. I don't think my emotions about it have anything to do with being bipolar either. I think even normal folks would agree with some of this.

      This condition, malfunction, disease , whatever you want to call it is so different for everyone, I think THAT'S why there is no real standard of care. Maybe one day there will be. Maybe one day there will be a cure. In my opinion for there to be a cure you have to find a cause. I think mine was caused because I ate 40plus mg of percocet every day for almost 2 years. Then again, it could be caused from my surgeries. Who knows but God. All I know is I have to deal with it. Some days I put on my big girl panties and do just that. Other days I crawl into a hole with the snuggie and remote.
 I still don't know what the right path of care is for me and neither does my Dr. I feel like we'[re all swinging blind folded at a pinata with a tooth pick!

.....that is all for today folks....

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